Patience was the voice of Ronnie. And it was Ronnie's voice that I had liked best of all. I'd even told Patience so, in my audio review. I felt my face flush.
But Patience didn't look much like Ronnie. She was short - maybe 5'1", and couldn't have weighed 100 lbs. soaking wet. The only things they had in common were thick eyebrows, and long hair - though Patience's was light brown, not dark.
I was too embarrassed to look her in the eyes.
- "Hey." she said. "Snogg really wants to meet you. He's right over there. Come on. Excuse us, guys, " she added, for Mike and the girls. "I'm going to introduce Cyrano to Snogg."
Patience didn't try to push my wheelchair. She just led the way. I appreciated the gesture (or lack of one - some of my relatives like to take charge and push me places I would rather not go). It would've been rude of me not to follow her.
- "The guy in the purple sweater." she said.
Snogg was a big fellow: tall, and heavy. When Patience told him who I was, his face split into a big grin. He reached out with a beefy paw to shake my hand.
- "Cyrano! The man himself. Glad you could make it. Hey - thanks for all your reviews. Seriously, they were excellent."
- "Your work was awesome." I said. "The quality, of course, but the quantity, too. I can't believe how many renders you did. I expected that to be the most time-consuming part of the whole process."
- "They do take a long time." he said. "But I'll let you in on a little secret. I started this whole thing almost 2 years ago. I'd finished dozens of renders before Patience even came on board. Right, Paysh?" He nonchalantly threw an arm around Patience's shoulders.
They looked like a bear and a pixie. But I have to admit, I felt a momentary pang of jealousy.
Momentary, only - because I realized how ridiculous it would sound to tell Patience that I was in love with her voice. Well ... I
had
told her that, sort of ... but maybe she would be kind enough not to mention it.
"Patience took over the writing." said Snogg. "To tell the truth, I was doing a shitty job of that, by myself. She created characters based on my illustrations, and then came up with a story to link them all together."
- "Not a very original story." said Patience. "But it was fun to create characters, working from Snogg's renders. Then we brought Mike in, and he's had to work his ass off to catch up."
- "You've done so much work. I can't believe how much you've put into the game." I said. "It must take up all of your time."
- "It does." said Snogg.
- "How can you afford it? I don't mean to be rude, or anything ... but I'm curious."
- "My Dad left me some money when he passed away." said the artist.
- "I'm sorry." I said.
- "Thanks. No big deal. I think he wanted me to go to college, or something. But this is what I like to do. Patience and I just ... we just agreed that we should do things differently."
Patience took over the explanation. "I think I told you before: the plan is to release a complete game, as bug-free as we can make it. We didn't want to release a demo, and ask for money, because then we'd under pressure to finish by a certain date."
"If this game attracts a following -"
- "Which it will." I said.
Patience smiled. "We hope so. If it does, then we can ask for funding for our next project."
- "If we can get enough patrons," said Snogg, "then I can do this full time, and Patience can maybe quite her job, too."
- "What do you do?" I asked.
- "I'm a waitress." she said.
- "Hey - there's Rick!" said Snogg. "S'cuse me guys - gotta talk to him. Hey: great to meet you, Cyrano. See you again, I hope."
- "Sure. Likewise."
The big artist left the two of us alone. I felt awkward and stupid. Patience, clearly, was much more at ease.
- "So ..." I began. "Are you and Snogg ...?"
- "Brother and sister? No - he's my cousin." said Patience. Then she must've seen my face. "Wait - you thought ... Snogg and I?" She laughed aloud - and there it was: Ronnie's laugh. I'd replayed the Halloween Party scene several times, just to hear that sound.
"No." she said. "Just cousins."
- "Ah."
- "What about you, Cyrano? Is there a lady love in your life?"
- "Eh? No. I mean ... not at the moment. No."
We were silent for only a moment, when I decided to take the plunge, and ask a question that had been on my mind from the moment Mike had introduced Patience.
"May I ask you something?" I said.
- "Please do."
- "When we met, just now ... you didn't seem at all surprised that I was in a wheelchair."
- "No." she said. "I knew."
There was only one way she could've found out. "Mike told you."
- "Actually, I pried it out of him. You know that Mike folds under pressure. And that he can't keep a secret - like my gender."
- "What did he tell you?" I finally dared to look Patience in the eyes. She had especially large grey-blue eyes.
- "That you have muscular dystrophy."
There it was.
It wasn't a closely-guarded secret, or anything like that. But I wasn't in the habit of telling online friends that I had MD.
If you're unfamiliar with it, MD breaks down skeletal muscles over time. There are several varieties, which differ in which muscles they affect, when the symptoms first appear, and how quickly they worsen.
But they all have one thing in common: there's no cure.
- "What else did he say?"
- "That you had Becker's MD - not Duchenne's. I looked them up."
I forced myself to look up and meet her eyes. I saw compassion, not pity. That may not seem like a big difference, but it was very important to me.
Duchenne's Muscular Dystrophy affects 1 in 5000 boys - only boys. It becomes apparent when they begin to walk. By age 10, those boys need braces; by age 12, they can't walk at all. Their expected lifespan ranges from 15 to 45.
I'm much luckier. Becker's MD affects only 1 in 35,000. My symptoms didn't appear until my early teens. I had weaknesses in my leg muscles, and my calves became enlarged.
Walking got to be more and more difficult. I fell, frequently, and then I couldn't get up without help. I tire easily, too.
I had tightness in my joints, and difficulty stretching my leg and heel muscles. So far, I'd avoided the contractures that can lead to skeletal deformities and curvature of the spine. I also had to be closely monitored because of the increased risk of heart disease.
There was no cure, but braces could help, along with frequent physiotherapy. Counselling and occupational therapy, corticosteroids ...
Strictly speaking, I didn't need the wheelchair all of the time - but eventually I would. In the meantime, Mom didn't want to worry about me falling in the street, or ... at a party.
- "I'm sorry." said Patience. "I didn't mean to invade your privacy. I just ... wanted to know more about you. I was hoping that ... we could be friends."
I forced a smile. She was right, though. We'd exchanged some very positive and productive emails, and she'd always responded promptly and generously to my audio critiques. I'd liked Patience even before I met her in person.
Plus ... she had the voice of a goddess.
Why couldn't we be friends? She knew I had MD, and she didn't seem freaked out. Mike was my friend; could Patience and I become close, too?
- "We can." I said. "Of course we can."
Patience smiled again. Part of it looked like relief. "I'm glad. Say - why don't we grab a coffee? Or lunch?"
- "That would be nice." I said.